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| Working Groups - Motor Phenotype - Dates - 15.09.2006 |
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AGENDA BLANKENBERGE 2006 FACE-TO-FACE MEETING OF MOTOR WORKGROUP
Friday, September 15, 11-16 h
- Face-to-Face Meeting in Münster 2006 – discussion & results
- Motor UHDRS
- Status of ongoing UHDRS-video-Project (funded by High-Q-Foundation)
- Planing of quality assurance for motor raters in the EHDN:
- annual assessment of motor UHDRS raters in EHDN via online-video samples
- discuss infrastructure for the future
- Amarin reassessment of videos from Rome
- JUHDRS – an update
- Physiotherapy in HD – a project in the pipeline
- Objective assessment of motor phenotype in HD – how to proceed?
- Proposals for instrumented biomarkers to measure progression of HD
- Studies that may be used to evaluate biomarkers
- Budget for Motor Workgroup
- Proposals for new projects / initiatives?
- Planning of next Face-to-Face Meeting in Spring 2007
- Joint meeting with symptomatic treatment workgroup
(Contact: Ralf Reilmann, MD,
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