O Sieci Huntington's Disease

Location:
Golden Tulip Leiden Centre (next to Leiden central train station).
Schipholweg 3
2316 XB Leiden, Netherlands

Thursday 10 March 2011

Morning session
10.00 -10.15      Welcome (Aad Tibben)
10.15 – 10.30    Updates of guidelines for predictive test: what happened since last meeting                     (M.Frontali, A. Martinez Descales, R. Roos))
10.30 - 11.00    New updates for prenatal diagnosis (Christine De Die)
11.00 – 11.30    Quality of predictive testing: minimal requirements (R. MacLeod)
11.30 – 12.00    Guidelines for diagnostic test (D. Craufurd)
12.00 - 12.30     Cooperation with young adults WG (D Bakker/M Kilmontowicz)

12.30 -13.30      Lunch

Afternoon session

13.30 – 16.30 Subgroups meeting
                       Subgroup 1- Updates for prenatal diagnosis (leader Christine de Die)
                       Subgroup 2 – Diagnostic test guidelines (leader David Craufurd)
                       Subgroup 3 - Quality of predictive testing: minimal requirements (Rhona MacLeod)
16.45 – 17.30 Discussion: Are there any issues left to be discussed in this WG? (Tibben Frontali          MacLeod)

Dinner 19.00h: meet at the hotel lobby at 19.00h

Friday 11 March 2011

9.00 - 10.00      Report of subgroup 1 and discussion
10 .00 - 11.00   Report of Subgroup 2 and discussion

11.00 - 11.15   Coffee break

11.15 - 12.15   Report of subgroup 3 and discussion
12.15 - 12. 30 Conclusions ( Tibben MacLeod Frontali)

12.30 – 13.00   Light lunch