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Euro Huntington's disease network [logo]
Working Groups - Motor Phenotype - Dates - 15.09.2006 -
AGENDA BLANKENBERGE 2006
FACE-TO-FACE MEETING OF MOTOR WORKGROUP


Friday, September 15, 11-16 h
  • Face-to-Face Meeting in Münster 2006 – discussion & results
  • Motor UHDRS
    • Status of ongoing UHDRS-video-Project (funded by High-Q-Foundation)
    • Planing of quality assurance for motor raters in the EHDN:
      • annual assessment of motor UHDRS raters in EHDN via online-video samples
      • discuss infrastructure for the future
    • Amarin reassessment of videos from Rome
    • JUHDRS – an update
  • Physiotherapy in HD – a project in the pipeline
  • Objective assessment of motor phenotype in HD – how to proceed?
    • Proposals for instrumented biomarkers to measure progression of HD
    • Studies that may be used to evaluate biomarkers
  • Budget for Motor Workgroup
  • Proposals for new projects / initiatives?
  • Planning of next Face-to-Face Meeting in Spring 2007
  • Joint meeting with symptomatic treatment workgroup
(Contact: Ralf Reilmann, MD, )[back]