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US
EHDN2016
DISEASE
NETWORK
REGISTRY
PROJECTS
LOGIN
Quality of Life - Meetings - Meeting July 2006
-
Nyheder
Projektet
Deltagerlande
Austria
Belgium
Czech Republic
Denmark
Finland
France
Germany
Ireland
Coordination
HD Associations
Dublin
Galway
Documents
Informed Consent
ERB
Italy
Netherlands
Norway
Poland
Portugal
Russia
Spain
Sweden
Switzerland
U.K.
Coordination
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Links
UKHDN
Standard of Care
Aberdeen
Ayr
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Blandford Forum
Bristol
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Cardiff
Dundee
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Exeter
Fife
Forth Valley
Glasgow
Gloucester
Hull
Inverness
Launceston
Leeds
Leicester
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London - Guy's Hospital
London - Hammersmith
London - NHNN
London - Royal Hospital
London - St. George´s
Manchester
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Oxford
Plymouth
Poole
Preston
Reading
Sheffield
Southampton
Stoke-on-Trent
Swindon
Wrexham
Outside Europe
Arbejdsgrupper
Advanced HD
Dates
Meetings
Behavioural Phenotype
Dates
Meetings
Psycho appr. & interv. Sub...
Biological Modifiers
Biomarkers
Dates
Meetings
Brain and Tissue Banking
Dates
Meetings
Cognitive Phenotype
Dates
Meetings
Environmental Modifiers
Functional Ability
Genetic Testing
Genetic Modifiers
Health Economics
Imaging
Juvenile HD
Motor Phenotype
Neuroprotective Therapy
Physiotherapy
Quality of Life
Dates
Meetings
Meeting 2005/03
Meeting 2005/09
Meeting 2006/07
Meeting 2006/12
Meeting 2007/09
Meeting 2008/08
Meeting 2008/09
Meeting 2009/11
Meeting 2010/05
Meeting 2016/09
Meeting 2017/07
Standard of Care
Dates
Meetings
Dieticians
SALT
Dental care
Occupational
Surgical Approaches
Symptomatic Research
Young Adults
Events
Kommunikation
Job Offers
Meeting in Stuttgart, 22nd July 2006
Agenda
Discussion of the experiences with the questionnaire
Structural problems
Translation problems
Other
Presentation of the results of the evaluation
Discussion of the results
Further work
AOB
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