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EHDN2016 ENFERMEDAD GRUPO REGISTRY PROYECTOS ENTRAR
 
 
  
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Reunión de los investigadores del Reino Unido, en Austin Court, Birmingham, UK.
Reunión del Grupo Europeo el 8 de julio, entrenamiento sobre EH el día 9 de julio.

Agenda 7th July

10.30 - 11.00 Arrival and coffee
11.00 – 11.40 Registry 3 UK update
11.40 – 12.00 Physiotherapy working group update
12.00 - 12.20 PEG/biopsy
12.20 - 12.40 APPG
12.40 - 1.00 Mouse models for HD
1.00 - 2.00 Buffet lunch
2.00 – 2.20 Neuroendocrine
2.20 – 2.40 TRACK
2.40 – 3.00 Huntexil update
3.00 – 3.20 HORIZON update
3.20 – 3.50 Tea/coffee break
3.50 – 4.10 Novartis Update
4.10 – 4.30 EPA
4.30 – 4.50 How can DeNDRoN help you?
4.50 – 5.10 Research forum
5.10 – 5.15 Closing remarks


Agenda for training day, 8th July






























BEGINNERS



ADVANCED
9.00 - 9.45




New to HD? - History, background and clinical progression of the disease



Clinical trials FAQ – for clinical staff and researchers interested in discussing all aspects of a clinical trial

9.45 - 10.00




Tea/coffee break



Tea/coffee break

10.00 - 11.00




Introduction to video based interviewing for psychiatric/behavioural rating with voting software



Advance video based interviewing for psychiatric/behavioural rating with voting software

11.00 - 12.00




Introduction to motor rater training - background and guide to basic motor rating with practice sessions and questions



Advanced motor rater training – workshop to view and discuss the nuances of motor rating to consolidate and advance existing knowledge

12.00 - 12.45




Lunch



Lunch

12.45 - 1.45




Introduction to cognitive rater training – background and purpose; examples and practice session



Advanced cognitive rater training - Advanced batteries; Subtleties and common errors; What's coming next in REGISTRY 3; FAQs
1.45 - 2.30


Declaration of Liberty/ Mental Capacity Act - practicalities and applications for HD

2.30- 2.45


Tea/coffee break

2.45 - 3.30


Developing research within a clinical setting – advice on setting up and expanding research within a clinical setting

3.30 - 3.40


Concluding remarks
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